When a child in the family has a rare and life-threatening illness, the entire family is affected, especially the child’s brothers and sister. These siblings have deep feelings, questions, worries. Their experience is very unique and they often feel different and isolated from their peers. They are also proud, dedicated and loving of their sibling who is sick. And they can be wise beyond their years.
This project is for siblings, by siblings
—siblings sharing their experience to help other siblings.
It is also for parents, by parents
—parents sharing their perspective and experiences to help other parents who wonder and worry about the challenges of caring for all of their children while one child in particular requires more medical care.
It is also for medical providers who care for these families and wish to hear more about the family experience.
